We're thrilled to announce that Casey Kidson, Founder of Dyfying Dystonia, has been recognized as the 2017 recipient of the Change-Maker Award by Neurological Health Charities Canada (NHCC); a coalition of organizations that represent people with brain diseases, disorders and injuries in Canada. The NHCC Change-Maker Award, first launched in 2011, aims to recognize outstanding contributions and leadership in inclusion, innovation and integration for the benefit of Canadians living with brain conditions.
Read more...Dystonia Canada News
April 16, 2018
The Jewish Family Service Calgary is honouring long time DMRF Canada Board Member Lil Faider at an event taking place in Calgary, AB on April 29, 2018. Lil is being honored for her exceptional contribution to so many organisations in Calgary including the DMRF Canada.
DMRF Canada is thrilled that Lil is getting this well deserved recognition and on behalf of the DMRF Canada Board of Directors, our network of volunteers, and the hundreds of individuals with dystonia who have benefitted from Lil's service and generosity, we congratulate her.
Read more... March 29, 2018
In recent months, DMRF Canada has received an increasing number of inquiries from dystonia patients about the efficacy of medical marijuana for the treatment of dystonia and other movement disorders. The research in this area is still inconclusive, with more studies on the way. Our Spring 2018 Newsletter included an article about what we now so far. Please find a list of sources below:
Read more... March 27, 2018
"We are very excited to serve as the home of the first Clinical Fellowship for Movement Disorders supported by Allergan Canada. The committee couldn't have selected a better candidate than Dr. Lizarraga, a bright, enthusiastic, inquisitive and dedicated young movement disorders trainee who will definitely make the most of this support and will make the Canadian dystonia community proud." - Dr. Anthony Lang, Toronto Western Hospital
Read more... March 5, 2018
This past month, members of the the DMRF Medical and Scientific Advisory Committee (MSAC) representing key opinion leaders in movement disorders, neuroscience and related fields met in Texas to offer their guidance on future research directions and priorities.
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March 1, 2018
As a proud member of Neurological Health Charities Canada (NHCC), DMRF Canada is pleased to present an opinion piece in the Globe and Mail that speaks to the urgent need for additional research funding and more supports provided to individuals dealing with neurological conditions in Canada. Read the article here.
Read more... February 27, 2018
Cervical dystonia is a focal dystonia that affects the head and neck. Cervical dystonia produces excessive muscle contractions in the neck. These muscle contractions cause involuntary, repetitive movements and awkward positions of the head, neck, and sometimes shoulders.
Cervical dystonia is sometimes referred to as spasmodic torticollis.
Cervical dystonia may cause:
Read more... February 26, 2018
The Dystonia Medical Research Foundation (DMRF) Canada, in partnership with Allergan Canada, is pleased to announce the selection of the candidate for the first-ever Clinical Fellowship for Movement Disorders, with a specialty in dystonia. Please click here to learn more.
Read more... February 26, 2018
Details of the study and eligibility details are available here. Canadian patients are welcome to participate in the study if eligible. The exception for international participants is that while some travel expenses are covered once participants have been enrolled in the study, only certain expenses within the United States can be covered.
Read more... February 4, 2018
Approval is based on the first large-scale neurotoxin trial to demonstrate meaningful functional improvement in pediatric lower limb spasticity
The Ipsen Biopharmaceuticals Canada Inc., the Canadian affiliate of Ipsen (EURONEXT PARIS: IPN) (ADR: IPSEY) today announced that Health Canada has approved DYSPORT THERAPEUTIC™ (abobotulinumtoxinA) for the treatment of lower limb spasticity in pediatric patients two years of age and older.
Click here for the press release.
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