What's Making News

June 1, 2016 - 8:37pm

TORONTO, (June 1st, 2016) – Former NHL player Rem Murray is lending his star power to this year’s Chuck’s Run for Dystonia in an effort to shine a light on this debilitating movement disorder affecting approximately 50,000 Canadians. Not only is Rem participating in the 5km run but, diagnosed in 2004, he’s sharing his personal and painful dystonia story to help raise awareness and much needed research funds for this relatively unknown disorder.

April 16, 2018 - 11:05am

The Jewish Family Service Calgary is honouring long time DMRF Canada Board Member Lil Faider at an event taking place in Calgary, AB on April 29, 2018. Lil is being honored for her exceptional contribution to so many organisations in Calgary including the DMRF Canada.

DMRF Canada is thrilled that Lil is getting this well deserved recognition and on behalf of the DMRF Canada Board of Directors, our network of volunteers, and the hundreds of individuals with dystonia who have benefitted from Lil's service and generosity, we congratulate her.

January 27, 2016 - 11:39am

Casey Kidson and DMRF Canada Executive Director, Stefanie Ince

 Now You Can Dyfy Dystonia For Yourself - Launch Your Own Campaign

November 16, 2016 - 12:38pm


December 4, 2017 - 9:43am

November 30, 2017. CBC Radio One, "Q"

Tom Power of CBC Radio One show the Q sat down with Shania Twain, Canadian country music legend, to talk about her life and her dystonia. You can listen to the interview here. Its so important to have advocates like Shania out there, sharing her story about her life with dyphonia, a form of dystonia.