We are thrilled to be joining the Greater Vancouver Area Dystonia Support Group and others from the dystonia community once again at this years 5K Scotiabank Charity Challenge taking place on Sunday, June 23, 2019.  

Save The Date: Chuck’s Run, Walk and Wheel 5KM for Dystonia is a fun, family-friendly event, hosted at High Park, Toronto on Sunday, June 2, 2019, to raise awareness and funds for dystonia, a neurological movement disorder. 

In February, the DMRF held our annual research meeting in San Antonio, TX. The MSAC is comprised of pre-eminent clinicians and researchers and represents expertise in microbiology, genetics, brain circuitry, epidemiology, and related fields.  MSAC members providing inaugural presentations in their area of expertise included Michelle Ehrlich, MD (Mt. Sinai School of Medicine), Niccolo Mecacci, MD, Ph.D. (Northwestern University), Jill Ostrem, MD (UCSF) and Roy Sillitoe (Baylor College of Medicine). The keynote lecture was offered by Pedro Gonzalez-Alegre, MD, Ph.D.

The DMRF is pleased to announce the appointment of Joel S. Perlmutter, MD as Scientific Director. (Pictured with Scientific Director Emeritus, Mahlon Delong, MD.)

We’re thrilled to introduce the 2019 Chuck’s Run Ambassador, Sarah-Anne.

Last year, Sarah-Anne and her family participated in Chuck’s Run, and it was a pivotal point in Sarah’s journey with dystonia.  “ To see the community come together – to know that so many people there – strangers who I didn’t know - had once been alone like me - was a feeling like no other.”