What's Making News

December 4, 2017 - 9:43am

November 30, 2017. CBC Radio One, "Q"

Tom Power of CBC Radio One show the Q sat down with Shania Twain, Canadian country music legend, to talk about her life and her dystonia. You can listen to the interview here. Its so important to have advocates like Shania out there, sharing her story about her life with dyphonia, a form of dystonia. 

February 10, 2017 - 1:47pm

Chicken Soup

In honor of Rare Disease Day, taking place on February 28, 2017, the DMRF Canada is excited  to announce our Chicken Soup for the Soul – Dystonia Edition writing contest. 

January 20, 2017 - 10:40am

Prime Minister Justin Trudeau was present on December 16, 2016 at the Montreal Neurological Institute and Hospital  for the announcement of the donation of $20 million by the Larry and Judy Tanenbaum family. This gift, which McGill University calls “transformative”,  will help to establish the Tanenbaum Open Science Institute, to facilitate the sharing of neuroscience findings worldwide to accelerate the discovery of leading edge therapeutics to treat neurological conditions.

November 24, 2016 - 1:12pm

Standford Medicine

In the past 30+ years, the Stanford Patient Education Research Center has developed, tested, and evaluated self-management programs for people with chronic health problems.